{"id":4027,"date":"2025-06-22T23:06:04","date_gmt":"2025-06-22T21:06:04","guid":{"rendered":"https:\/\/www.italfarmaco.be\/therapeutische-domeinen\/ziekte-van-duchenne\/"},"modified":"2025-10-18T22:07:56","modified_gmt":"2025-10-18T20:07:56","slug":"ziekte-van-duchenne","status":"publish","type":"page","link":"https:\/\/www.italfarmaco.be\/bl\/therapeutische-domeinen\/ziekte-van-duchenne\/","title":{"rendered":"De ziekte van Duchenne"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background fusion-parallax-none nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position:right center;--awb-background-position-medium:center center;--awb-background-position-small:right center;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:5%;--awb-padding-bottom:5%;--awb-padding-top-medium:7%;--awb-padding-bottom-medium:7%;--awb-padding-top-small:14%;--awb-padding-bottom-small:14%;--awb-background-color-small:var(--awb-color4);--awb-background-image:url(&quot;https:\/\/www.italfarmaco.be\/wp-content\/uploads\/sites\/11\/2024\/06\/ITALFARMACO_TwoBoys_1920.webp&quot;);--awb-background-size:cover;--awb-background-size-medium:cover;--awb-background-size-small:0;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:60%;--awb-order-medium:0;--awb-spacing-right-medium:3.2%;--awb-spacing-left-medium:3.2%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-one\" style=\"--awb-text-color:#ffffff;--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:30px;--awb-margin-left-small:0px;--awb-margin-bottom-medium:30px;\"><h1 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:50;line-height:1.2;\">De ziekte van Duchenne<\/h1><\/div><div class=\"fusion-text fusion-text-1\" style=\"--awb-content-alignment:center;--awb-text-color:#ffffff;\"><p><em>\u201eWe zijn er trots op de gemeenschap rond zeldzame ziekten te mogen ondersteunen en voelen ons vereerd dat we kunnen bijdragen aan de wereldwijde missie om nieuwe oplossingen te vinden voor de ziekte van Duchenne.\u201d<\/em><\/p>\n<p>Francesco De Santis, voorzitter van Italfarmaco<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position:right center;--awb-background-position-small:left center;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:20px;--awb-padding-bottom:20px;--awb-padding-top-medium:20px;--awb-padding-bottom-medium:20px;--awb-padding-top-small:20px;--awb-padding-bottom-small:20px;--awb-background-color:#f8f8f8;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><nav class=\"fusion-breadcrumbs awb-yoast-breadcrumbs fusion-breadcrumbs-1\" style=\"--awb-alignment:center;--awb-breadcrumb-sep:&#039;\/&#039;;text-align:center;\" aria-label=\"Breadcrumb\">\tVous \u00eates ici : \n<span><span><a href=\"https:\/\/www.italfarmaco.be\/bl\/\">Home<\/a><\/span><\/span><\/nav><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position:right center;--awb-background-position-small:left center;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:70px;--awb-padding-bottom:50px;--awb-background-color:#ffffff;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_4_5 4_5 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:80%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.4%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:2.4%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:38;line-height:var(--awb-typography1-line-height);\">Wat is de ziekte van Duchenne ?<\/h2><\/div><div class=\"fusion-text fusion-text-2 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-margin-bottom:50px;\"><p>De Duchenne-spierdystrofie (DMD), of de ziekte van Duchenne, is een zeldzame genetische aandoening die gekoppeld is aan het X-chromosoom en die een verzwakking en progressieve degeneratie veroorzaakt van alle spieren in het lichaam. Ze is het gevolg van een afwijking in het dystrophine-gen, dat verantwoordelijk is voor de productie van een eiwit, dystrofine genoemd. Dit eiwit speelt een rol bij het ondersteunen van spiervezels.<sup>1, 2<\/sup><\/p>\n<p>In Belgi\u00eb treft de ziekte van Duchenne ongeveer 300 mensen; elk jaar worden een twintigtal jongens geboren met de aandoening.<sup>2, 3<\/sup><\/p>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_4_5 4_5 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:80%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.4%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:2.4%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\" style=\"--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\"><h3 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:28;line-height:var(--awb-typography1-line-height);\">Comment \u00e9volue la myopathie de Duchenne ?<\/h3><\/div><div class=\"fusion-text fusion-text-3 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-margin-bottom:50px;\"><p>De progressie van de ziekte wordt gekenmerkt door het geleidelijk verlies van het loopvermogen, hartcomplicaties en ademhalingsproblemen. De behandeling van pati\u00ebnten is multidisciplinair en is gericht op het optimaliseren van hun spiercapaciteiten en op het voorkomen en behandelen van complicaties.<\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-4 fusion-flex-container has-pattern-background has-mask-background fusion-parallax-none hundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position-small:center center;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:0px;--awb-padding-right:0px;--awb-padding-bottom:0px;--awb-padding-left:0px;--awb-min-height:555px;--awb-min-height-medium:400px;--awb-min-height-small:300px;--awb-background-color:var(--awb-color3);--awb-background-image:url(&quot;https:\/\/www.italfarmaco.be\/wp-content\/uploads\/sites\/11\/2024\/06\/Duchenne-Muscular-Dystrophy-DMD-Rare-Disease-Italfarmaco-SpA.webp&quot;);--awb-background-size:cover;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-center fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-5 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position:right center;--awb-background-position-small:left center;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:70px;--awb-padding-bottom:50px;--awb-background-color:var(--awb-color3);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:38;line-height:var(--awb-typography1-line-height);\">Leven met de ziekte van Duchenne<\/h2><\/div><div class=\"fusion-text fusion-text-4 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-margin-bottom:50px;\"><p>Over de hele wereld, van Europa tot de Verenigde Staten en daarbuiten, delen leden van de Duchenne-gemeenschap verhalen van veerkracht en hoop:<\/p>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_5_6 5_6 fusion-flex-column fusion-flex-align-self-stretch box-verdi-living-with-duchenne\" style=\"--awb-padding-top:50px;--awb-padding-right:10%;--awb-padding-left:10%;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:83.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.304%;--awb-margin-bottom-large:50px;--awb-spacing-left-large:2.304%;--awb-width-medium:83.333333333333%;--awb-order-medium:0;--awb-spacing-right-medium:2.304%;--awb-spacing-left-medium:2.304%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-5 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:25px;--awb-line-height:35px;--awb-margin-bottom:30px;\"><p>\u201eHet is belangrijk om te onthouden dat de meeste kinderen met de ziekte van Duchenne gelukkige kinderen zijn en dat de meeste families zich herpakken na de schok van de diagnose.\u201d<\/p>\n<\/div><div class=\"fusion-text fusion-text-6 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:14px;--awb-margin-bottom:50px;\"><p>Elizabeth Vroom, World Duchenne Organization (UPPMD)<\/p>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-6 fusion_builder_column_5_6 5_6 fusion-flex-column fusion-flex-align-self-stretch box-verdi-living-with-duchenne\" style=\"--awb-padding-top:50px;--awb-padding-right:10%;--awb-padding-left:10%;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:83.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.304%;--awb-margin-bottom-large:50px;--awb-spacing-left-large:2.304%;--awb-width-medium:83.333333333333%;--awb-order-medium:0;--awb-spacing-right-medium:2.304%;--awb-spacing-left-medium:2.304%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-7 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:25px;--awb-line-height:35px;--awb-margin-bottom:30px;\"><p>\u201eZodra de definitieve diagnose werd gesteld, konden we ons gevecht eindelijk benoemen. Hoop blijft altijd aanwezig, want we werken onvermoeibaar, dag na dag, aan een toekomst zonder Duchenne.\u201d<\/p>\n<\/div><div class=\"fusion-text fusion-text-8 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:14px;--awb-margin-bottom:50px;\"><p>Silvia Avila, Voorzitster &#8211; Duchenne Parent Project (DDP) &#8211; Spanje<\/p>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-7 fusion_builder_column_5_6 5_6 fusion-flex-column fusion-flex-align-self-stretch box-verdi-living-with-duchenne\" style=\"--awb-padding-top:50px;--awb-padding-right:10%;--awb-padding-left:10%;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:83.333333333333%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.304%;--awb-margin-bottom-large:50px;--awb-spacing-left-large:2.304%;--awb-width-medium:83.333333333333%;--awb-order-medium:0;--awb-spacing-right-medium:2.304%;--awb-spacing-left-medium:2.304%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-9 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:25px;--awb-line-height:35px;--awb-margin-bottom:30px;\"><p>\u201eToen het woord Duchenne tien jaar geleden in ons leven kwam, was dat een schok \u2013 ik kon het niet eens uitspreken. Geleidelijk beseften we dat we samen verder konden, dat er manieren zijn om met deze aandoening samen te leven dankzij een gemeenschap van gezinnen die bereid zijn hun ervaringen te delen, en dankzij een internationale wetenschappelijke gemeenschap waarvan het onderzoek ons hoop geeft.\u201d<\/p>\n<\/div><div class=\"fusion-text fusion-text-10 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-font-size:14px;--awb-margin-bottom:50px;\"><p>Moeder van een kind met de ziekte van Duchenne, Duchenne Parent Project (DDP) \u2013 Itali\u00eb<\/p>\n<\/div><\/div><\/div><\/div><\/div><div id=\"our-history\" class=\"fusion-container-anchor\"><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-6 fusion-flex-container has-pattern-background has-mask-background fusion-parallax-none nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-menu\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:90px;--awb-padding-bottom:110px;--awb-padding-top-small:40px;--awb-padding-bottom-small:60px;--awb-background-image:url(&quot;https:\/\/www.italfarmaco.be\/wp-content\/uploads\/sites\/11\/2024\/05\/history-bg-e1715157941593.jpg&quot;);--awb-background-size:cover;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-8 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:#ffffff;--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:30px;--awb-margin-left-small:0px;--awb-margin-bottom-medium:30px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:38;line-height:var(--awb-typography1-line-height);\">Wat zijn de tekenen en symptomen van de ziekte van Duchenne?<\/h2><\/div><div class=\"fusion-text fusion-text-11 fusion-text-no-margin\" style=\"--awb-content-alignment:center;--awb-text-color:#ffffff;--awb-margin-bottom:50px;\"><p>Meer informatie over het verloop van de ziekte van Duchenne.<\/p>\n<\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat fusion-button-default-size button-custom fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" style=\"--button_accent_color:#ffffff;--button_border_color:var(--awb-color2);--button_accent_hover_color:var(--awb-color4);--button_border_hover_color:#ffffff;--button_gradient_top_color:var(--awb-color2);--button_gradient_bottom_color:var(--awb-color2);--button_gradient_top_color_hover:#ffffff;--button_gradient_bottom_color_hover:#ffffff;\" target=\"_self\" title=\"Tekenen en symptomen van de ziekte van Duchenne\" aria-label=\"Tekenen en symptomen van de ziekte van Duchenne\" href=\"https:\/\/www.italfarmaco.be\/bl\/therapeutische-domeinen\/ziekte-van-duchenne\/symptomen-ziekte-van-duchenne\/\"><span class=\"fusion-button-text awb-button__text awb-button__text--default\">Tekenen en symptomen van de ziekte van Duchenne<\/span><\/a><\/div><\/div><\/div><\/div><\/div><\/div><div id=\"nuttige-links\" class=\"fusion-container-anchor\"><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-7 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:70px;--awb-padding-bottom:0px;--awb-background-color:var(--awb-color5);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-9 fusion_builder_column_3_4 3_4 fusion-flex-column\" style=\"--awb-padding-bottom:40px;--awb-bg-size:cover;--awb-width-large:75%;--awb-margin-top-large:0px;--awb-spacing-right-large:2.56%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:2.56%;--awb-width-medium:66.666666666667%;--awb-order-medium:0;--awb-spacing-right-medium:2.88%;--awb-spacing-left-medium:2.88%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-margin-bottom:30px;--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:38;line-height:var(--awb-typography1-line-height);\">Nuttige links<\/h2><\/div><div class=\"fusion-text fusion-text-12\" style=\"--awb-content-alignment:center;\"><p>De gemeenschap rond zeldzame ziekten en de ziekte van Duchenne legt de nadruk op bewustmaking en het tot stand brengen van verbindingen tussen families, terwijl ze hulpmiddelen aanbiedt rond pati\u00ebnteneducatie, onderzoek en ondersteunende diensten. Hieronder vindt u enkele regionale en internationale pati\u00ebntenorganisaties waar u nuttige informatie en mogelijkheden tot contact en begeleiding kunt vinden.<\/p>\n<\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-10 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-11 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-stretch box-bianchi-ultimo-container\" style=\"--awb-padding-top:30px;--awb-padding-bottom:30px;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:50px;--awb-spacing-left-large:3.84%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"--awb-flex-grow:0;--awb-flex-grow-medium:0;--awb-flex-grow-small:0;--awb-flex-shrink:0;--awb-flex-shrink-medium:0;--awb-flex-shrink-small:0;width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-0 fusion_builder_column_inner_1_1 1_1 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-padding-top:30px;--awb-padding-right:50px;--awb-padding-left:50px;--awb-padding-right-small:30px;--awb-padding-left-small:30px;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-13\" style=\"--awb-content-alignment:center;\"><a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.DPPB\" href=\"#\"><strong>Duchenne Parent Project Belgique<\/strong><\/a>\n<p>Toegewijd aan het ondersteunen van gezinnen die getroffen zijn door de ziekte van Duchenne. De vereniging werkt aan het vergroten van bewustzijn, het financieren van onderzoeksprojecten en het verbeteren van de toegang tot behandelingen. Ze biedt ouders ook een plek om ervaringen uit te wisselen en hulpmiddelen te vinden.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.spierziekten-vlaanderen\" href=\"#\"><strong>Spierziekten Vlaanderen (Muscle Diseases Flanders)<\/strong><\/a>\n<p>Ondersteunt mensen met neuromusculaire aandoeningen in Vlaanderen, biedt informatie, middelen en ondersteunende diensten aan pati\u00ebnten en hun families, en bevordert bewustwording en onderzoek.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.ABMM\" href=\"#\"><strong>ABMM: Belgische Vereniging tegen Neuromusculaire Ziekten ASBL<\/strong><\/a>\n<p>Actief in de strijd tegen neuromusculaire ziekten. De ABMM ondersteunt mensen die getroffen zijn en hun naasten, onder meer via een speciale groep voor Duchenne. Ze werkt in de Franstalige regio (Walloni\u00eb-Brussel) en in samenwerking met Spierziekten Vlaanderen voor federale dossiers.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.RaDiOrg\" href=\"#\"><strong>Rare Diseases Organisation Belgium (RaDiOrg)<\/strong><\/a>\n<p>Behartigt de belangen van mensen met een zeldzame ziekte in Belgi\u00eb, sensibiliseert zorgverleners en het grote publiek, en ondersteunt onderzoek en toegang tot zorg.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-12 fusion_builder_column_1_2 1_2 fusion-flex-column fusion-flex-align-self-stretch box-bianchi-ultimo-container\" style=\"--awb-padding-top:30px;--awb-padding-bottom:30px;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:50px;--awb-spacing-left-large:3.84%;--awb-width-medium:50%;--awb-order-medium:0;--awb-spacing-right-medium:3.84%;--awb-spacing-left-medium:3.84%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-builder-row fusion-builder-row-inner fusion-row fusion-flex-align-items-flex-start fusion-flex-justify-content-center fusion-flex-content-wrap\" style=\"--awb-flex-grow:0;--awb-flex-grow-medium:0;--awb-flex-grow-small:0;--awb-flex-shrink:0;--awb-flex-shrink-medium:0;--awb-flex-shrink-small:0;width:104% !important;max-width:104% !important;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column_inner fusion-builder-nested-column-1 fusion_builder_column_inner_1_1 1_1 fusion-flex-column fusion-flex-align-self-stretch\" style=\"--awb-padding-top:30px;--awb-padding-right:50px;--awb-padding-left:50px;--awb-padding-right-small:30px;--awb-padding-left-small:30px;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-14\" style=\"--awb-content-alignment:center;\"><a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.CureDuchenne\" href=\"#\"><strong>CureDuchenne<\/strong><\/a>\n<p>Gespecialiseerd in de ziekte van Duchenne, biedt informatie over de aandoening, behandelingen, onderzoek en ondersteuning voor getroffen gezinnen.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.DDF\" href=\"#\"><strong>Duchenne Data Foundation<\/strong><\/a>\n<p>De DDF stelt alle beschikbare gegevens over dystrofinopathie\u00ebn ter beschikking van de wereldwijde Duchenne-gemeenschap.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.EURO-NMD\" href=\"#\"><strong>EURO-NMD<\/strong><\/a>\n<p>Europees Referentienetwerk voor Neuromusculaire Ziekten.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.EURORDIS\" href=\"#\"><strong>EURORDIS (Rare Diseases Europe)<\/strong><\/a>\n<p>Werkt aan de verbetering van de levenskwaliteit van mensen met zeldzame ziekten in Europa. Biedt educatief materiaal, participatiekansen en gemeenschapssteun.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.RDI\" href=\"#\"><strong>Rare Diseases International (RDI)<\/strong><\/a>\n<p>RDI is het wereldwijde netwerk van mensen met een zeldzame ziekte, ongeacht nationaliteit of specifieke aandoening.<\/p>\n<a class=\"fusion-modal-text-link\" data-toggle=\"modal\" data-target=\".fusion-modal.WDO\" href=\"#\"><strong>World Duchenne Organisation<\/strong><\/a>\n<p>Een internationale koepelorganisatie van nationale verenigingen van pati\u00ebnten met Duchenne-spierdystrofie. Toegewijd aan onderzoek en behandeling, het promoten van goede zorgstandaarden en het informeren van ouders en pati\u00ebnten wereldwijd.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-13 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-1 DPPB modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-1\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-1\" data-dismiss=\"modal\" aria-hidden=\"true\">Duchenne Parent Project Belgique<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van Duchenne Parent Project Belgi\u00eb\" data-url=\"https:\/\/www.duchenneparentproject.be\/accueil\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-14 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-2 spierziekten-vlaanderen modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-2\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-2\" data-dismiss=\"modal\" aria-hidden=\"true\">Spierziekten Vlaanderen<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van Spierziekten Vlaanderen (Muscle Diseases Flanders)\" data-url=\"https:\/\/www.spierziektenvlaanderen.be\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-15 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-3 ABMM modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-3\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-3\" data-dismiss=\"modal\" aria-hidden=\"true\">ABMM<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van ABMM\" data-url=\"https:\/\/www.telethon.be\/l-association\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-16 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-4 RaDiOrg modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-4\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-4\" data-dismiss=\"modal\" aria-hidden=\"true\">RaDiOrg<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van Rare Diseases Organisation Belgium\" data-url=\"https:\/\/www.radiorg.be\/fr\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-17 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-5 CureDuchenne modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-5\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-5\" data-dismiss=\"modal\" aria-hidden=\"true\">CureDuchenne<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van CureDuchenne\" data-url=\"https:\/\/cureduchenne.org\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-18 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-6 DDF modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-6\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-6\" data-dismiss=\"modal\" aria-hidden=\"true\">DDF<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van Duchenne Data Foundation\" data-url=\"https:\/\/www.duchennedatafoundation.org\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-19 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-7 EURO-NMD modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-7\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-7\" data-dismiss=\"modal\" aria-hidden=\"true\">EURO-NMD<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van EURO-NMD\" data-url=\"https:\/\/ern-euro-nmd.eu\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-20 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-8 EURORDIS modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-8\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-8\" data-dismiss=\"modal\" aria-hidden=\"true\">EURORDIS<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van EURORDIS\" data-url=\"https:\/\/www.eurordis.org\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-21 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-9 RDI modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-9\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-9\" data-dismiss=\"modal\" aria-hidden=\"true\">RDI<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van Rare Diseases International\" data-url=\"https:\/\/www.rarediseasesinternational.org\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-22 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-modal modal fade modal-10 WDO modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-10\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-10\" data-dismiss=\"modal\" aria-hidden=\"true\">WDO<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Naar de website van World Duchenne Organisation\" data-url=\"https:\/\/www.worldduchenne.org\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-8 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:20px;--awb-background-color:var(--awb-color6);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1300px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-23 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-scroll-devices=\"small-visibility,medium-visibility,large-visibility\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:23px;--awb-content-font-size:var(--awb-typography4-font-size);--awb-icon-alignment:left;--awb-hover-color:var(--awb-color2);--awb-border-color:var(--awb-color3);--awb-background-color:var(--awb-color1);--awb-divider-color:var(--awb-color3);--awb-divider-hover-color:var(--awb-color3);--awb-icon-color:var(--awb-color4);--awb-title-color:var(--awb-color4);--awb-content-color:var(--awb-color4);--awb-icon-box-color:var(--awb-color8);--awb-toggle-hover-accent-color:var(--awb-color2);--awb-toggle-active-accent-color:var(--awb-color4);--awb-title-font-family:&quot;Outfit&quot;;--awb-title-font-weight:400;--awb-title-font-style:normal;--awb-title-font-size:16px;--awb-content-font-family:&quot;Outfit&quot;;--awb-content-font-style:normal;--awb-content-font-weight:400;\"><div class=\"panel-group fusion-toggle-icon-unboxed\" id=\"accordion-4027-1\"><div class=\"fusion-panel panel-default panel-8c07d9e2c644ae8bf fusion-toggle-no-divider\" style=\"--awb-title-color:var(--awb-color4);--awb-content-color:var(--awb-color4);\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_8c07d9e2c644ae8bf\"><a aria-expanded=\"false\" aria-controls=\"8c07d9e2c644ae8bf\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-4027-1\" data-target=\"#8c07d9e2c644ae8bf\" href=\"#8c07d9e2c644ae8bf\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon fa-caret-up fas\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon fa-caret-down fas\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">Referenties<\/span><\/a><\/h4><\/div><div id=\"8c07d9e2c644ae8bf\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_8c07d9e2c644ae8bf\"><div class=\"panel-body toggle-content fusion-clearfix\">1. Protocole National de Diagnostic et de Soins (PNDS) 2019 \u2013 Dystrophie musculaire de Duchenne.<\/p>\n<p>2. Belgisch register voor neuromusculaire ziekten \u2013 Jaarverslag 2016.<\/p>\n<p>3. Website: <a class=\"fusion-modal-text-link\" href=\"#\" data-toggle=\"modal\" data-target=\".fusion-modal.parentproject\">Duchenne Parent Project \u2013 Wat is de ziekte van Duchenne ?<\/a><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-modal modal fade modal-11 parentproject modal-external-link-js\" tabindex=\"-1\" role=\"dialog\" aria-labelledby=\"modal-heading-11\" aria-hidden=\"true\" style=\"--awb-border-color:var(--awb-color3);--awb-background:#ffffff;\"><div class=\"modal-dialog modal-lg\" role=\"document\"><div class=\"modal-content fusion-modal-content\"><div class=\"modal-header\"><button class=\"close\" type=\"button\" data-dismiss=\"modal\" aria-hidden=\"true\" aria-label=\"Close\">&times;<\/button><h3 class=\"modal-title\" id=\"modal-heading-11\" data-dismiss=\"modal\" aria-hidden=\"true\">Duchenne Parent Project<\/h3><\/div><div class=\"modal-body fusion-clearfix\">\n<div data-text=\"Bekijk het artikel op de website van Duchenne Parent Project\" data-url=\"https:\/\/www.parentprojectmd.org\/about-duchenne\/what-is-duchenne\/\"><\/div>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":12,"featured_media":0,"parent":4013,"menu_order":4,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"footnotes":""},"class_list":["post-4027","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>De ziekte van Duchenne (DMD)<\/title>\n<meta name=\"description\" content=\"De ziekte van Duchenne is een zeldzame neuromusculaire aandoening, gekenmerkt door progressieve spierschade en spierzwakte.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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